Sian's Page

This page is dedicated to my beautiful daughter Sian who, after having a perfectly normal childhood suffered a stroke, at the age of 12.  Sian was subsequently diagnosed with a rare condition called Sturge Weber Syndrome.  Frequently characterised by having a port wine stain birthmark on the upper portion of the face and head.  This is a vascular disorder which can severely affect the brain, causing blindness, deafness and paralysis from birth.  Relatively little reseach or study has been done in SWS due to its rarity.

13 years on, Sian leads as normal a life as possible now but periodically suffers from unregulated seizures and crippling headaches.  She is an inspiration to me and I want to celebrate her courage and determination to lead a normal life.

I have decided to nominate and fundraise for a charity or medical disorder each quarter.  It will be one that is relatively unknown - in order of course to raise awareness - where possible, there will be a button on the front page of my website, as well as the Links page, which will allow you to directly visit the website and read more and hopefully make a contribution too.  Starlight received NO government or lottery funding.

I never thought that the lives of my family would be affected by something so suddenly and so drastically.....take a moment to reflect on this please - it can happen to anyone.

The first charity to mention is called the Starlight Children's Foundation. 

My family and I were given a fabulous trip to Disneyworld in Florida, after the wonderful doctors at both Epsom General Hospital Pediatric Unit and St. George's Hospital approached the children's charity Starlight and told them how desperately ill Sian had been.  It has always been my wish to repay this kindness and so now it is my intention to donate a percentage of each private reading, and a proportion of all Evening's of Clairvoyance to the named charity of the quarter.

In Starlight's own words....

Starlight Children's Foundation brightens the lives of seriously and terminally ill children by granting their wishes and providing hospital entertainment to help take their minds off the pain, fear and isolation of their illness...."